Latest news

3 weeks 2 days ago
The new Scottish Infected Blood Support Scheme is now operational and will begin making payments to beneficiaries this month.  The scheme, managed by NHS National Services Scotland (NSS), has taken over this role from the existing UK support schemes as a result of the recommendations made by the independent Scottish Financial Review Group, of which The Hepatitis C Trust were a part, in December 2015. In response to the news of the scheme's official launch, Health Secretary Shona Robison MSP said:
3 weeks 6 days ago
The Welsh Government has announced changes in support for individuals who contracted hepatitis C and HIV through NHS treatment with contaminated blood. Under the new scheme, those already receiving regular payments will see an increase in the amount of money they receive, to include an amount towards additional expenses such as increased winter fuels, treatment (travel/overnight accommodation) and insurance (personal/travel). 
1 month 6 days ago
Public Health England has published its annual report on Hepatitis C in England, providing an overview of progress towards tackling the virus and proposals for future action. The report reveals the formation of a new National Viral Hepatitis Strategy Group, which will provide strategic direction and advice on the national approach to hepatitis C. The group, which will include representation from The Hepatitis C Trust, will be responsible for helping to drive progress towards elimination of the virus. Key findings of the report include:
1 month 1 week ago
The UK Government has launched a consultation seeking views on new proposals for reform to the support provided to people who were infected with hepatitis C via NHS contaminated blood in England.
1 month 3 weeks ago
Hepatitis C patients and nurses have made clear, in two reports launched by The Hepatitis C Trust today, the significant challenges still faced by people living with the virus, including societal stigma as well as the on-going restrictions on access to NICE-approved, curative treatments.
1 month 3 weeks ago
The Hepatitis C Trust was established in 2001 by people living with hepatitis C who found that there was no organisation to represent their interests, and who wanted to ensure that their voice was heard. In the years since, this has remained our one guiding principle. We exist exclusively for people living with hepatitis C and their families, and everything that we do is focused on providing a concerted patient voice.
1 month 4 weeks ago
The Hepatitis C Trust and NAT (National AIDS Trust) have expressed concern about recent press coverage around the use of ‘spit hoods’ by police forces in the UK that has focused on their supposed value in preventing hepatitis C and HIV transmission. Both organisations wish to make clear that hepatitis C and HIV cannot be transmitted via spitting. Suggestions to the contrary are not only incorrect, but are hugely damaging as they reinforce existing stigma and misconceptions that surround both viruses.
2 months 2 weeks ago
The Hepatitis C Trust has today published a new resource, the Patient Activist Toolkit, which can be downloaded here. The toolkit is a guide to campaigning to help make tackling hepatitis C a priority in England over the coming years. It covers a range of activity, from relatively small actions like writing to MPs, to bigger actions like joining The Hepatitis C Trust's Patient Council and meeting with elected representatives.
3 months 4 days ago
The Hepatitis C Trust's Chief Executive, Charles Gore, yesterday featured in a BBC Radio Wales broadcast on hepatitis C. This week's episode of the current affairs programme Eye on Wales, hosted by Kayley Thomas, focussed on hepatitis C patients buying treatments online, often through so-called 'buyers' clubs'.
3 months 1 week ago
The Hepatitis C Trust's Chief Executive, Charles Gore, last night featured in BBC One's regional current affairs show Inside Out. The programme, which focussed on the current pressures on the healthcare system, included a section on the inequality of access to new hepatitis C treatments.

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